PPIE in Action Meeting: Uniting Healthcare Professionals, Patients, the Public & Scientists for Better Endocrine Research
In this special fringe event from SfE BES 2026 colleagues from across the endocrine community met to explore how meaningful collaboration with patients and the public can elevate the quality, relevance, and impact of your work.
This session unpacked the essentials of Patient and Public Involvement and Engagement (PPIE):
- What it really means in the context of endocrine research
- How to manage expectations on both sides
- What patient support groups should be asking for
- What researchers, clinicians, and nurses should be prepared to offer.
Full programme
- Welcome and introductions - Helen Turner and Aled Rees (5 minutes)
- What does best practice in PPIE look like? - Caroline Gillett, Birmingham (25 minutes)
- James Lind Alliance Priority Setting Partnership in PCOS - Aled Rees and Verity Patient Support Group (20 minutes)
- PPIE in a basic science grant proposal -Obesity/Type II Diabetes case study - Ruth Morgan (15 minutes)
- Co-designing research with patient organisations - Sofia Llahana (15 minutes)
- Providing the patient perspective in thyroid research trials - British Thyroid Foundation (10 minutes)
- Panel Q&A for all speakers (15-20 minutes)
- Close out and next steps - Helen Turner (5 minutes)
