PPIE in Action Meeting: Uniting Health Care Professionals, Patients, the Public & Scientists for Better Endocrine Research
Join us on Sunday 1 March from 4-6pm for insight and discussions, followed by networking with drinks and nibbles from 6-7pm
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In this special fringe event from SfE BES 2026 we will be joined by colleagues from across the endocrine community to explore how meaningful collaboration with patients and the public can elevate the quality, relevance, and impact of your work.
This session will unpack the essentials of Patient and Public Involvement and Engagement (PPIE):
- What it really means in the context of endocrine research
- How to manage expectations on both sides
- What patient support groups should be asking for
- What researchers, clinicians, and nurses should be prepared to offer.
You’ll gain practical insight into building strong partnerships, creating effective networks, and establishing collaborations that support more inclusive and impactful endocrine research.
This is an exclusive event for SfE BES 2026 ticket holders and can be purchased when booking your main conference ticket. The cost for the PPIE in Action meeting is £30, of which any remaining funds go towards sustaining our society outreach.
For those who have already purchased your tickets to SfE BES 2026, please re-visit your registration by clicking "manage your registration" in your confirmation email and entering your unique booking reference to add this additional event to your booking.
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Full programme
- Welcome and introductions - Helen Turner and Aled Rees (5 minutes)
- What does best practice in PPIE look like? - Caroline Gillett, Birmingham (25 minutes)
- James Lind Alliance Priority Setting Partnership in PCOS - Aled Rees and Verity Patient Support Group (20 minutes)
- PPIE in a basic science grant proposal -Obesity/Type II Diabetes case study - Ruth Morgan (15 minutes)
- Co-designing research with patient organisations - Sofia Llahana (15 minutes)
- Providing the patient perspective in thyroid research trials - British Thyroid Foundation (10 minutes)
- Panel Q&A for all speakers (15-20 minutes)
- Close out and next steps - Helen Turner (5 minutes)
Followed by the Networking Session 6-7pm:
