Society for Endocrinology Research Projects
Our UK-wide research and audit projects advance understanding and treatment of endocrine conditions through our network of contributing members based in regional centres.
The Society’s current areas of focus include projects to improve clinical endocrinology services and curating and signposting useful information.
Projects can be proposed by Society members to be considered by the Society’s Clinical Committee. To discuss the suitability of your project please email [email protected]
Please note that the Society is no longer able to support interventional or non-interventional multicentre randomised controlled trials.
View the Steering Group Remit
Research Proposal Form
How do we manage our Real-World Studies?
Take a look at the flowchart below to see how we manage our Real-World Studies at each phase
Research study delivery process infographic
Infographic showing a five-phase process for developing, approving, delivering and managing a clinical research study, from initial concept through to data access and storage.
Phase One: Initiation and Planning
The process begins with idea formulation and industry discussion involving a Society member, Society team and industry partner. This leads to financial and governance approval, including grant applications to third parties and review by a Corporate Liaison Committee for commercially funded projects. The proposal then moves to committee oversight, where the Clinical Committee provides formal approval. A Study Steering Committee (SSC) is established to guide the project.
Phase Two: Platform Configuration and Ethical Approval
The SSC oversees ethical and regulatory submission, including ethics applications and adoption into the Clinical Research Network (CRN) portfolio. At the same time, the research platform and technical portal are configured using the PeopleWith system. Portal design and functionality are refined through SSC workshops and outputs. This stage supports a flexible research design that can be adapted as required.
Phase Three: Site Setup and Capacity Confirmation
Research and Development (R&D) submission pack, including the study protocol and patient information sheet, is distributed to participating NHS Trusts. The project team undertakes site identification and outreach to recruit NHS Trusts. Capacity and capability are then assessed and confirmed through engagement with participating sites and Society networks.
Phase Four: Data Collection
Once sites are activated, clinical data integration begins. Data collection requirements and timelines are determined by the Study Steering Committee, and participating sites submit study data according to the agreed protocol.
Phase Five: Data Storage and Access
All study data are stored within a secure cloud-based storage system provided by PeopleWith. Patients can access their own app data, while participating sites can view their specific patient and clinical data through a unified dashboard. The Society receives collated, pseudo-anonymised data identified only by study ID. External organisations may submit data access requests, which are reviewed by the relevant committee. Approved third parties are granted restricted, time-limited access to specific pseudo-anonymised datasets.
The infographic uses arrows between stages to show the progression of the study from concept development and governance approval, through ethics, site setup and data collection, to secure storage, reporting and controlled data access.
Real World Studies registered on the NIHR Associate Principal Investigator (PI) Scheme
The NIHR Associate Principal Investigator (PI) Scheme is a national initiative designed to equip health and care professionals with the skills, experience, and confidence to become the research leaders of tomorrow. By taking part, individuals gain hands on experience in delivering high quality NIHR Portfolio studies while working closely with an experienced Local PI.
The Scheme not only develops future research leaders but also strengthens research culture at participating sites. Local PIs benefit from enhanced leadership and mentorship opportunities, improved study capacity, and stronger collaboration with national study teams.
Whether you are a clinician seeking your first steps in research or a site looking to build sustainable research capability, the Associate PI Scheme offers a supported, practical, and rewarding pathway into clinical research leadership.
The NSAT and PROMMIS studies are registered on the scheme. See the attachment for a summary of what it entails.
For more information, visit the NIHR website.
The Society’s sponsored research projects
Status and recruitment numbers are found below with links to the study webpage if you are interested in learning more (numbers accurate as of February 2026)
Visit our Real World Data Registries pages for more info
