Society for Endocrinology - a world-leading authority on hormones

Real-world data registries 

The Society for Endocrinology has joined forces with PeopleWith to develop the next generation of real-world data registries to advance understanding and optimise patient care.

By harnessing the power of the patient's voice, you will be able to:

Real-world data registries will allow you to make well-informed decisions about your patients' health, drawing from a wealth of holistic data. Think of it as having a global network of patient insights to inform your clinical judgments.

With this collaboration, you'll empower your patients to take charge of their health. They can actively monitor their symptoms, track diagnoses, and manage medications. This means you will have a more comprehensive overview of patient histories, resulting in more effective treatment plans.

Patient reported outcomes puts the patient front and centre. Gaining insight into your patients’ experiences will aid your clinical assessments and help you tailor treatments for better outcomes.

These data registries will foster collaboration among healthcare professionals, researchers, and patients. They will allow the ability to identify trends, support evidence-based practices and provide new insights into endocrine care. By encouraging your patients to participate, they will not only benefit but help advance the entire discipline.

Active real-world data registries 


How can I get involved?

We're working on a condition-by-condition basis, with specific configuration, and targeting over 30 endocrine conditions over the next ten years. 

This collaboration represents a pivotal moment and will help transform endocrine patient care. We can’t wait to see the positive impact it will have for both healthcare professionals and patients alike.


If you want to learn more about data registries and how to get involved, please complete the form below.

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