Society for Endocrinology - a world-leading authority on hormones

Patient support

The Society is committed to supporting groups that represent patients with endocrine conditions by facilitating dialogue with the medical community.

We work with a number of approved patient support groups that represent patients with endocrine conditions. We award grants to enable these groups to carry out their work. We also help these groups to attend Society events where they can network with the clinicians and nurses that treat and care for patients.

“We are very grateful to the Society for giving us the opportunity to attend events. We meet doctors and nurses and share our information with them, allowing them to inform and support their patients. Together we can improve understanding and awareness and improve the care of Endocrine Patients.” - Turner Syndrome Support Society (UK)

To be eligible for Society support, patient support groups must fulfil the criteria in the guidelines and apply for approval from our Clinical Committee. For any PGS related queries, please email us at

View Patient Support Guidelines


Apply for affiliation with the Society for Endocrinology

Patient support groups we work with

ACC Support UK

Addison's Disease Self Help Group

Alex, The Leukodystrophy Charity

Association for Multiple Endocrine Neoplasia Disorders (AMEND)

British Thyroid Foundation

Brittle Bone Society

Butterfly Thyroid Cancer Trust

CAH Support Group

Child Growth Foundation


Haemochromatosis UK

Klinefelter's Syndrome Association UK

National Association for Premenstrual Syndrome (NAPS)  

Neuroendocrine Cancer UK

Parathyroid UK

Pituitary Foundation

Prader-Willi Syndrome Association UK

Thyroid Eye Disease Charitable Trust

Turner Syndrome Support Society